This is going to endeavour to be a factual account rather than a raging at the light or the storms of life. When I sat down to write it I wasn’t sure I would publish it as I really feel it is intensely personal, however I realise I may be able to help someone out there. This is my account and no one else’s, those closest to me will have experienced things differently. Some of us share all our fears and doubts with friends and family, others- like me – hibernate. Luckily inside me is what I call my India rubber ball; when I have been down or depressed at times, I feel this irrepresible glimmer of optimism eventually begin to grow. It has been a good friend to me.
You may or may not have read my previous blog where I described the loss of my beloved godmother, this followed closely on the prolonged death of my mother. Most people would understand the difficulties these two deaths brought to me but I think it is time to explain a bit further. This may even help someone going through the same thing. I really hope it will explain me and my recent behaviour a bit more clearly.
Mum was diagnosed with grade 4 metastasised cancer in November 2020; I gave up work to look after her; but after breaking her leg due to secondary bone cancer she went into hospital where she caught covid; listening to her on the phone hallucinating was tough; she survived and went to a care home where she had several strokes rending her right hand useless. Due to covid she had very few visitors but at the very end they let me stay beside her for ten days and nights until she died in July 2021. I will gloss over all the pain which not only I but my brother and daughter and others suffered.
During this time my godmother was diagnosed with a rare condition called CPD (cortico basal degeneration). It meant that she too lost the use of her right hand and eventually her right arm. She and I spoke very often in the mornings and when I could visit her in London we discussed what the condition would mean. She did not want to become the prisoner of her body that my mother had become, she did not want to be hoisted and unable to do most things for herself. The condition leads to almost complete paralysis of one side of the body, dementia and eventually the loss of swallow reflex. She decided that rather than take a cocktail of drugs (an option), she would go to Switzerland for assisted suicide. I went with her. She left behind a much loved husband and his children. One of her sons-in-law came with us which was invaluable for me. Being an accidental witness to the moments when she said goodbye to her husband was one of the most beautiful and moving things I ever experienced.
Bev was not able to get herself dressed and undressed so it was a privilege to be able to do that for her. We had her last three nights together. For the final two we slept in single beds, side by side, holding hands and talking – I will never forget those times. Bravery doens’t describe her, she was noble. I can’t describe the ending as it is still too hard to visit, it was not the beautiful, elegant sanctuary which we had expected. Coming home and carrying her suitcase, leaving her there, was agony. The whole event was traumatic for me.
When we got back we had to engage a solicitor to deal with the police for us. It is a crime in this country so we were suspects and as we had assisted by pushing the wheel chair, driving the car and helping with arrangements all counted against us; also the fact that we were mentioned in the will. There has been a long, agonising time which I have found almost impossible to endure, made harder by the fact we were forbiden to talk about it. The solicitor was not able to find the correct person within the Metropolitan police who would deal with our case. We had been warned that it could take two years. I developed extreme anxiety, unable to go into supermarkets or see friends, I was still able to function enough to drive my son to school and pick him up most days but he got his own food. I was able to hide the true extent of my anxiety from most people, not airing your dirty laundry in public and keeping a stiff upper lip is ingrained and is sometimes quite useful. My health took a huge hit as living on adrenaline is seriously damaging, I had a breakdown really. I eventually found a wonderful counsellor who has made a massive difference. Being able to talk without judgement or fear of competition, being in a safe place to have panic attacks and held in safety and wisdom has made a huge difference. I have a handful of girlfriends who have been like angels, not trying to make me better, listening and just being gentle. I have not been able to be with people who are strong or quick and efficient. My preferred place was on the sofa with all the curtains shut. I had a vivid fear of the police knocking on the door and an image of an angry police man – this is not a small thing but a real projection. When you fnd someone in this state, don’t try to cajole them out of it, just be with them, be still and be gentle, they are probably doing the very best they can do to get through the days.
It has taken me three months; my godmother died on 1st December 2022 – we have incredibly been given the all-clear by the police. The most heartfelt and empathic letter arrived from a DS in the Major Investigation Team of the Met police. I wrote a physical letter to her saying how massive the impact of her email was, particularly because she was thoughtful and compassionate. Since that email came, I feel free to focus entirely on the grief which I feel for Bev. As her husband said, she was not merely a person, she was a way of life. For anyone lucky enough to have known her, she was wise, intelligent always curious, knowledgeable, immensely kind, beautiful and loving. For me, she always strived to make me the best me I could be – by making me question what was right in front of me, by encouraging my endeavours, by complimenting and openly loving me without being tricky or competitive. I miss her every day in a million ways.
I recently had a mole checked which is apparently a BCC, I have also been told that I have Lupus which affects my skin and hair. I realise that whilst not life threatening, these and the fact that next year I hit a big birthday, mean that I need to work out what is important for me. Sitting alone on a beach I realised that I was not, as I have always maintained – half way through my life, but three quarters. That is a shock to me and I have been very thoughtful as a result.
I have experienced 7 deaths of close members of my family since 2000; two divorces after very difficult marriages, two of my children have suffered from mental health issues; money worries; 3 ruptured discs; ok! So now it sounds like a pity party! As I said at the beginning this is not an account from the view of anyone else and it is just factual.
When I mentioned how much I felt I had on my shoulders, a wise friend said “He only gives us what we can handle, but I wish He didn’t trust you so much”.
Poetry means a lot to me and I was lucky enough to talk about it to both mum and Bev, it is not only reassuring but reflects some of what I am feeling at different times. I had the greatest beginning in life as I had mother who read to me. My most beloved three children and one grandson are future I know – whatever that looks like. My loyal and loving friends make me feel heard, supported, that it’s a two-way thing with us and that we can still laugh inspite of it all. One of my all time favourite poets is Rupi Kaur – not only her poetry but also her drawings. “and here you are living despite it all” makes me cry.